Smile Like Kay

Welcome, and thank you for taking the time to learn more about Smile Like Kay! Kay was our beloved oldest daughter, diagnosed with Metachromatic Leukodystrophy (MLD) at just 5 years old. MLD is a rare and devastating disease that destroys the brain’s white matter, with no known cure. When we received Kay’s diagnosis, we were told she would gradually lose her ability to walk, talk, and eat, eventually living in a vegetative state for several years. Heartbreakingly, Kay’s journey was even shorter, and just 18 months after her diagnosis, she became our guardian angel.

In her honor, we created Smile Like Kay to share the joy and warmth of Kay’s smile with children and families enduring unimaginable challenges. Through our carefully curated Smile Like Kay boxes, we hope to bring moments of joy, comfort, and hope to families navigating their own medical journeys. Additionally, we are committed to helping families access critical medical equipment that insurance often denies because no family should have to bear that financial burden alone.

Thank you for your love, support, and for helping us carry Kay’s legacy forward by spreading smiles to those who need them most.